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World Down Syndrome Day 2022

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A portion of this world’s population is not aware of the terminologies associated with pre-childhood care that, in a way, affects the health of newborn babies. A result of such carelessness is a disorder that is caused medically when cell division results in an extra full or partial copy of chromosome 21. This exceptional material becomes the reason for the hindrance in the mature development of the baby, and they evolve a variety of physical features attributed to Down Syndrome.

 

The severity varies from mild to extreme, but the symptoms continue and cause lifelong intellectual disability and developmental regression. However, it commonly creates other medical abnormalities, including heart and gastrointestinal disorders. To improve the quality of life of the children, a better and advanced understanding of Down Syndrome can create an impact on the lives of the families. Access to health care facilities and early intervention programs should be made available with research and inclusive education.

 

The General Assembly took a great step, UN in December 2011 was to dedicate a day to spread awareness and make the citizens empathetic and educated towards Down Syndrome. The General Assembly concluded, with effect from 2012, to make World Down Syndrome Day an international day to be recognized by international organizations along with civil society, non-governmental organizations, and private sectors.

Symptoms, Causes, and Effects

The person with Down Syndrome should be treated as an individual, not as a liability due to mere intellectual and developmental problems. However, children with Down Syndrome have similar facial features. Some of them are:

 

  • Flattened face
  • Small head
  • Short neck
  • Protruding tongue
  • Upward slanting eyelids (palpebral fissures)
  • Small ears
  • Wide, tiny hands with a single crease in the palm
  • Relatively short fingers and small hands and feet
  • Excessive flexibility
  • Short height
  • Intellectual disabilities: Most children with Down syndrome have unusual cognitive impairment. Language is delayed, wherein both short and long-term memory is affected.

 

World Down Syndrome Day 2022

 

World Down Syndrome Day is a globally exposed awareness program that lets the families and affected people connect to share experiences, knowledge and empower each other for equal access to resources to bring a positive change.

It is celebrated on 21st March 2022, and the theme of this year’s World Down Syndrome Day is #Inclusion. A collective understanding of the inclusivity that shadows the lives of people with down syndrome needs to be advocated. This year, together with this identified plan, the world calls for an inclusive policy and decision-making.

 

Andrew Boyd, Director of Down’s Syndrome International, in an interview with UN News, shares, “What we need to see is a paradigm shift towards understanding that people with Down’s syndrome have valuable contributions to make to society and until that happens, there are always going to be blockages to getting into school, to getting proper medical attention and living independently.” Therefore, the parameters of negative capabilities will be dissolved to create communities that accelerate a wave of self-esteem and equality.

 

A special event is organized by Down Syndrome International and sponsored by UN Permanent Missions, the UN Children’s Fund (UNICEF), and international agencies and non-governmental organizations. The message shared from a recent event examined, “when people with Down Syndrome and other disabilities are given opportunities to participate, all people benefit from this shared environment of friendship, acceptance, and respect for everyone, and high expectations are created.”

Our Responsibilities – The Unanswered Questions!

An approximation of cases of Down Syndrome is between 1 in 1,000 to 1 in 1,100 live births worldwide. Every year 3,000 to 5,000 children are born with this chromosome disorder. Through proper parental care and guidance, and support systems, people with Down Syndrome can lead a balanced life.

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